For my own edification though critique is certainly welcome:
1) Because my sites grew out of interest in what I had to say on certain topics or they wouldn't exist at all. And because every time I say I am shutting them down because I can't afford them, someone gives me money and/or offers me free hosting.
2) Yes, at least some people do.
3) They don't. The current world view is that people like me do not get well, symptom management is the name of the game. That is an exact quote from well-paid, really smart specialist. Current treatment is incredibly expensive and basically leaves people mutilated. There is a reason cystic fibrosis is called a "dread disease": What it does to our body and our life is horrifying.
4) Mostly drugs and surgeries. They are incredibly expensive and, as noted above, have gruesome side effecs. For example, cystic fibrosis accounts for roughly onr third of all adult and one half of all pediatric lung transplants in the U.S. today. You have to e pretty damn sick to make the transplant list. You can die while waiting for transplant. You can die while undergoing transplant. You can die due to "rejection" after getting your new lungs. If all goes well with tranpant, you remain on anti-rejection drugs the rest of your life. In contrast, I regrew my missing lung tissue. I used to have a small hole in my left lung. I do not anymore. Preventing deterioration so people can keep their own lungs is superior in every way to letting them get sick enough to qualify for transplant.
5) There is apparently no money in it. It involves significant lifestyle changes which people are resistant to. People simply do not know how to do it. And preventing a problem is much harder to take credit for or show the accomplishment than heroically saving someone who is sick enough to qualify for the transplant list.
Comments
For my own edification though critique is certainly welcome:
1) Because my sites grew out of interest in what I had to say on certain topics or they wouldn't exist at all. And because every time I say I am shutting them down because I can't afford them, someone gives me money and/or offers me free hosting.
2) Yes, at least some people do.
3) They don't. The current world view is that people like me do not get well, symptom management is the name of the game. That is an exact quote from well-paid, really smart specialist. Current treatment is incredibly expensive and basically leaves people mutilated. There is a reason cystic fibrosis is called a "dread disease": What it does to our body and our life is horrifying.
4) Mostly drugs and surgeries. They are incredibly expensive and, as noted above, have gruesome side effecs. For example, cystic fibrosis accounts for roughly onr third of all adult and one half of all pediatric lung transplants in the U.S. today. You have to e pretty damn sick to make the transplant list. You can die while waiting for transplant. You can die while undergoing transplant. You can die due to "rejection" after getting your new lungs. If all goes well with tranpant, you remain on anti-rejection drugs the rest of your life. In contrast, I regrew my missing lung tissue. I used to have a small hole in my left lung. I do not anymore. Preventing deterioration so people can keep their own lungs is superior in every way to letting them get sick enough to qualify for transplant.
5) There is apparently no money in it. It involves significant lifestyle changes which people are resistant to. People simply do not know how to do it. And preventing a problem is much harder to take credit for or show the accomplishment than heroically saving someone who is sick enough to qualify for the transplant list.
6) It is a wellness model, not a disease model.
7)