I feel like I might have perspective here, as I went through this decision. I died, was brought back to life (despite 99.99% chance of that never happening), and strangely have most of my faculties still available. I have a rare condition where I can just go v-fib at any time for no real reason at all.
The doctor came into my room, gave me the option of getting an ICD implant. My first 4000 thoughts were hell no. He explained that otherwise I could just drop dead at any moment, and in all likelihood I wouldn't be the 1/1000 that survived. And if I were to survive I might just be a vegetable next time. I very hesitantly accepted after a lot of thought. BTW this is my 20s that this happened.
Since then more than 1 person has died due to a software error with my device, and I have not been shocked once. I get "patched" all the time to rule out certain errors. But the odds of me dying without the device are still much higher than the odds of my dying with it. More importantly I fully believe the standard of care / investigation into my problems have increased significantly because I opted into having the device. Is that fair? Not really. Is that realistic? Yep, Boston Scientific wants data to make better devices.
I'm in a country where the device was free to install, all care after is entirely free, which definitely helped make the decision. But if there's never a situation in which you'd consider such a compromise I'd say you've probably never woken up in the ICU with no memory of the past 20 days.
Comments
I feel like I might have perspective here, as I went through this decision. I died, was brought back to life (despite 99.99% chance of that never happening), and strangely have most of my faculties still available. I have a rare condition where I can just go v-fib at any time for no real reason at all.
The doctor came into my room, gave me the option of getting an ICD implant. My first 4000 thoughts were hell no. He explained that otherwise I could just drop dead at any moment, and in all likelihood I wouldn't be the 1/1000 that survived. And if I were to survive I might just be a vegetable next time. I very hesitantly accepted after a lot of thought. BTW this is my 20s that this happened.
Since then more than 1 person has died due to a software error with my device, and I have not been shocked once. I get "patched" all the time to rule out certain errors. But the odds of me dying without the device are still much higher than the odds of my dying with it. More importantly I fully believe the standard of care / investigation into my problems have increased significantly because I opted into having the device. Is that fair? Not really. Is that realistic? Yep, Boston Scientific wants data to make better devices.
I'm in a country where the device was free to install, all care after is entirely free, which definitely helped make the decision. But if there's never a situation in which you'd consider such a compromise I'd say you've probably never woken up in the ICU with no memory of the past 20 days.