Comment on Ask HN: How to be my own genetic disease researcher for my partner?parentComments−gonehome4yThere was another really good one on HN a while back about a husband doing research to try to save his wife from FFI.This was it and seems relevant: http://www.cureffi.org/2019/04/29/financial-modeling-in-rare...−lazyasciiart4yAlso this woman who identified her own disease, her father and a champion athlete https://www.propublica.org/article/muscular-dystrophy-patien...−exikyut4ySeriously, 43 points 6 years ago??? Resubmit this already.−ac2u4yThat was an excellent read.
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There was another really good one on HN a while back about a husband doing research to try to save his wife from FFI.
This was it and seems relevant: http://www.cureffi.org/2019/04/29/financial-modeling-in-rare...
Also this woman who identified her own disease, her father and a champion athlete https://www.propublica.org/article/muscular-dystrophy-patien...
Seriously, 43 points 6 years ago??? Resubmit this already.
That was an excellent read.