Wanting to force doctors to apologize, for one, which I think is counterproductive. Don't wait for an apology, just get your treatment plan and get out of the office.
This mindset is unfortunate, and detrimental to patients. There have been a lot of studies on CBT/GET, and there isn't really any doubt that they are moderately effective. The only issue I have with the treatments is that the theories behind them (deconditioning and abnormal illness beliefs) don't really have any evidence. I suspect they work for other reasons. However, that shouldn't be a reason to completely reject them.
I was speaking to someone recently who recovered from CFS (after being mostly bed-bound) through CBT and lifestyle changes, and she is now completely recovered. In her case there were a lot of recent traumatic experiences which contributed to her illness, so CBT was very helpful in addressing those issues.
Some charities, such as Action 4 ME, seem a little more open-minded about CBT.
Comments
What biases would someone from the ME Association have other than wanting to be able to treat the condition?
Differentiating it from being just another branch of psychiatry. Not what I believe, but that's clearly a potential avenue for bias.
Wanting to force doctors to apologize, for one, which I think is counterproductive. Don't wait for an apology, just get your treatment plan and get out of the office.
Total and utter rejection of any possibility that some cases of ME could be helped (even a little bit) with a psychological therapy.
This mindset is unfortunate, and detrimental to patients. There have been a lot of studies on CBT/GET, and there isn't really any doubt that they are moderately effective. The only issue I have with the treatments is that the theories behind them (deconditioning and abnormal illness beliefs) don't really have any evidence. I suspect they work for other reasons. However, that shouldn't be a reason to completely reject them.
I was speaking to someone recently who recovered from CFS (after being mostly bed-bound) through CBT and lifestyle changes, and she is now completely recovered. In her case there were a lot of recent traumatic experiences which contributed to her illness, so CBT was very helpful in addressing those issues.
Some charities, such as Action 4 ME, seem a little more open-minded about CBT.